The Boy Whose Skin Fell Off (2004)

A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full.

Released

2004-03-25

Genres

Documentary, TV Movie

Runtime

50 min

Status

Released

Directed / written by

Patrick Collerton

TMDB rating

7.4/10 from 9 votes